Barent Clinical Commissioning Group (CCG) have produced the following list of resources that parents and carers may find helpful when researching the type of care and support they can expect for their children with SEND.
Overview of process and laws relating to SEND
- Guide to the SEND system for parents. An 'easy read' version is also available.
- Guide to the SEND code of practice for health professionals
- Supporting Pupils at School with Medical Conditions- statutory guidance
- Local area inspection letters
Council for Disabled Children (CDC)
The CDC is the government’s strategic partner for the SEND reforms and their website has all up to date information and regular bulletins, for professionals and for parents.
- The Expert Parent Programme - understanding and navigating the health system for your family, online learning and workshops. Includes specific modules on CAMHS and Deaf Children.
- EHC Plan Guide – a guide from A to K
- CDC Exemplar Guide to EHC Plans
- Securing good advice for EHC Plans – health and social care
Guidance for Parent / Carer Forums on working with health services
Contact is another voluntary sector organisation, established to help and support families affected by SEND. They have produced a series of resources to help parent/carer forums engage with health services.
Other health and SEND-related resources
- National Framework for Children and Young People’s Continuing Care – guidance and framework
- Family Guide to the SEND Reforms for children and young people with complex health needs and lifelimiting conditions
- Transforming Care – Building the Right Support for children, young people and adults with Learning Disability and/or Autism and behaviour that challenges
- Future in Mind 2015 - Promoting, protecting and improving our children and young people’s mental health and wellbeing
- Lenehan Review –‘These Are Our Children’ 2017 Review on care and support for children and young people with complex needs involving mental health, learning disabilities and/or autism.
- Lenehan Review- ‘Good Intentions- Good Enough?’ 2017 Review on 52 week residential placements
- Disability Matters- free online materials and learning developed by Department of Health , RCPCH, Royal Colleges and parents working together with other key partners
- Get your rights- children’s rights within the NHS Constitution